Meet Robert and Evan   What is ALD?   Robert's 2001 Bone Marrow Transplant   It Runs in the Family   A Typical Day   A Parent's Perspective   You Are What You Eat   How YOU Can Help   Guestbook & Contact Info   Photo Gallery   Make-A-Wish Foundation®   Updates on Robert and Evan   ALD Resources	Meet Robert and Evan What mother doesn't jump at the opportunity to boast about her children? I have been blessed with two beautiful sons. Although only two years apart (almost to the day!) and constant companions, Robert and Evan have very different personalities. This was apparent to Joe and I from the time they were babies. Robert is our deep-thinker. He is extremely sensitive and has a natural talent for mechanics. He just loves to take things apart and put them back together. As a toddler barely able to walk, he would spend hours opening and closing our sliding glass door! Always trying to figure out how things work. He is a quiet child, small in size, but his heart is all encompassing. Robert was eight years old at the time of this writing, Bless the Lord he is now sixteen! Evan is our little monkey. Precocious and curious, he came into the world ready to explore it. Evan could climb our bookshelves before he could even walk (much to my chagrin!). Imaginative and outgoing, he's drawn to strange-sounding places and loves to watch and analyze movies. Evan was six years old at the time of this writing, Bless the Lord he is now fourteen! Our sons are absolutely awesome kids and are treasured beyond description. Both of my sons were born with a genetic disease called Adrenoleukodystropy, also known as ALD. If you have ever seen the movie Lorenzo's Oil, starring Nick Nolte and Susan Sarandon, then you are familiar with this devastating degenerative neurological disease. If you have not seen this movie, please go out and rent it (click here for a description). The movie leaves you with the impression that ALD has been cured for those boys that take the oil discovered by the Odone family. Unfortunately, this is not the case. Therefore, it is our goal is to make as many people as possible aware of the long-term effects of ALD.
Return to Top	Stem Cell Research Can Cure ALD