Meet Robert and Evan   What is ALD?   Robert's 2001 Bone Marrow Transplant   It Runs in the Family   A Typical Day   A Parent's Perspective   You Are What You Eat   How YOU Can Help   Guestbook & Contact Info   Photo Gallery   Make-A-Wish Foundation®   Updates on Robert and Evan   ALD Resources	ALD Resources This is a list of websites that I have come across in my search for every bit of information I could find about ALD. If you know of a site that should be added, please email me at kelly@aldboys.com. The Myelin Project         Hope for Multiple Sclerosis, Leukodystrophy and the many other demyelinating disorders. The Myelin Project aims to accelerate research on myelin repair. Behind the Myelin Project is a multinational gathering of families struck by one demyelinating disease or another. The president and vice-president of the Project are Augusto and Michaela Odone, whose struggle to cure their son Lorenzo of ALD was dramatized in the 1992 Universal Studios release Lorenzo's Oil starring Nick Nolte and Susan Sarandon. http://www.myelin.org Bone Marrow Donation The Caitlin Raymond International Registry http://www.crir.org/ National Marrow Donation Program http://www.marrow.org American Bone Marrow Donor Registry http://www.abmdr.org/ Cord Blood Registry http://www.cordblood.com/ My Friends Care - Bone Marrow Transplant Fund http://www.myfriendscare.org/ National Bone Marrow Transplant Link http://comnet.org/nbmtlink/ American Red Cross http://www.redcross.org/ ALD Medical / Scientific National Center for Biotechnology Information http://www.ncbi.nlm.nih.gov/disease/ALD.html OMIN - Online Medelian Inheritance in Man - Johns Hopkins University http://www3.ncbi.nlm.nih.gov/ htbin-post/Omim/dispmim?300100 Rare Genetic Diseases in Children http://mcrc22.med.nyu.edu/ murphp01/homenew.htm The Peroxisome Website http://www.peroxisome.org/ GeneClinics - X-linked ALD http://www.geneclinics.org/profiles/x-ald/ WebMD Health http://my.webmd.com/content/asset/ adam_disease_adrenoleukodystrophy Dr. Koop Medical Encyclopedia http://www.drkoop.com/conditions/ency/article/001182.htm National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/health_and_medical/ disorders/adrenolu_doc.htm The Human and Scientific Story of Adrenoleukodystrophy by Anna Arnaudo http://serendip.brynmawr.edu/bb/neuro/ neuro00/web1/Arnaudo.html The New England Journal of Medicine -- April 15, 1993 -- Vol. 328, No. 15 - Lorenzo's Oil and Thrombocytopenia in Patients with Adrenoleukodystrophy http://www.nejm.org/content/1993/0328/0015/1126.asp The New England Journal of Medicine -- September 9, 1993 -- Vol. 329, No. 11 - Lorenzo's Oil -- Hope and Disappointment http://www.nejm.org/content/1993/0329/0011/0801.asp The New England Journal of Medicine -- September 9, 1993 -- Vol. 329, No. 11 - A Two-Year Trial of Oleic and Erucic Acids ("Lorenzo's Oil") as Treatment for Adrenomyeloneuropathy http://www.nejm.org/content/1993/0329/0011/0745.asp The New England Journal of Medicine -- February 24, 1994 -- Vol. 330, No. 8 - Lorenzo's Oil and Lymphocytopenia http://www.nejm.org/content/1994/0330/0008/0577.asp The New England Journal of Medicine -- June 30, 1994 -- Vol. 330, No. 26 - More On Lorenzo's Oil http://www.nejm.org/content/1994/0330/0026/1904.asp The New England Journal of Medicine -- September 3, 1998 -- Vol. 339, No. 10 - Lovastatin for X-Linked Adrenoleukodystrophy http://www.nejm.org/content/1998/0339/0010/0702.asp The New England Journal of Medicine -- March 6, 1997 -- Vol. 336, No. 10 - Adrenoleukodystrophy Presenting as Postperfusion Syndrome http://www.nejm.org/content/1997/0336/0010/0731.asp Support for Families with ALD ALD Interactive Family Resources http://www.interactivefamilyresources.com/ ALD Family Support Trust http://www.aldfst.org.uk/ United Leukodystrophy Foundation http://www.ulf.org/ Other ALD Family Sites please let us know if you have a website for an ALD boy.
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